I really feel so blessed to have everybody praying for my little man William, and for his recovery. I've really seen God work in his life so much already. He's a miracle boy who was ment to be here from the beginning, everything in his life says he was ment to be here, and wouldn't be here if God didn't want him here. Here's a little re-cap of where we've been:
0. Contractions during pregnancy started at 27 weeks and didn't result in full labor till 37 weeks, and full term.
1. Born Breech
2. Not Breathing at birth
3. Small Cord
4. Small Placenta (1/4 of the normal size of a placenta) Likely IUGR baby. 4#10 oz at birth and other twin 7# 1 oz
5. Blue Floppy baby given CPR at birth and transported to the hospital, and intebated over night
6. Pink upon arrival to the hospital
7. Breathing room air the next day
8. Slight breathing support the afternoon after, but breathing room air on own within 48 hours of birth.
9. 1st EEG Showed depressed activity, but no seizures
10. 2nd EEG Showed improvement, but still depressed and no seizures.
11. CT Scan showed subdural hematoma (slight bleed next to the brain, but no treatment required)
12. 3rd EEG showed angry activity and little activity between right and left halfs.
13. MRI showed clot and confirmed clinical picture, but no new news.
14. No Gag/Limited Gag, requires G-Tube and Fundoplication surgery
15. 2nd Surgeon recommends waiting till 3000 Grams/6# 9oz.
16. So we wait for weight gain, and begin pumping and feeding hind milk. Weight gain prior to this not as good as expected. Feedings are increased volume of milk given
17. I invested in paci stock and bought several different styles of pacis, and found one that William tolerated better.
18. Speech tried a style bottle that mimics the paci that he likes
19. Two oral feeds a day begun
20. And today Oral feeds increased to 3 times a day.
21. If feeding continues to improve it is possible surgery may be avoided completely.
So the new news for Sunday is William is now being fed orally at 11am, 5pm and 11pm. Sunday he took 20 cc at each feeding. 11am was 20-25 min, 5pm was 15 min and 11pm was 10 min. This is great news. When I left Sunday evening I did ask for the nurse to check with Dr Lucena to see if they could also do a feeding at 5am because it really seemed to help him remember how to do the suck swallow breath thing by doing it every 6 hours instead of just every 12 hours.
Also when I spoke to Dr Lucena Sunday, I asked him what's going on now, are we still planning on doing the surgery at 3000 grams or does the bottle feeding change that, and if so what the plan. Of course everything depends on William and the progress he's making and continues to make, but the 3000 grams isn't a hard and fast rule, as long as it appears feeding are going to take weeks and not months to progress to full feeds, he can continue to work on feedings and AVOID the surgery!!! He just needs to now increase his strength and stamina. He's taking 60cc for each feeding and about 1/3 of that orally 3 times a day. This needs to increase to taking 60cc 8 times a day