I've been able recently to cut back on the Diazepam that I've been giving William (we also started reflux meds around the same time a couple of weeks ago). He was at 2.0mg 3x a day, and after we started the reflux meds I cut back to 1.7, then 1.5, and now yesterday we did 1.5 2x a day and I didn't give the 3rd dose because he still looked great! I'm probably going to cut it back even further to 1.2. He generally seems more awake, interactive, and moving more, also with him rolling over. Also, he's still napping, he's hungrier (that's a good thing), he's still happy and smiling most of the time. I remember before he started the medication he was very uncomfortable all the time, it wasn't till after the medicine he started smiling.
Last night William was playing with my hair and grabbing it, I'd release his hand and he would immediately do it again with a smirk on his face. I need to setup some net of toys for him to play under with things he can grasp like hair or beads so he has a spot to play.
I was thinking maybe a foam mat on the bottom (like memory foam) with PVC pipes around it going up to a net/plexi glass above with holes in it and toys tied hanging from that, some plastic hair, scarves, toys for him that are easy to grasp, some beads. Anybody have on old bed top liner/pillow top that they are getting rid of?
William just Rolled over for the first time, it wasn't a flop, as he's so great at doing it was a true roll!!! He was laying on the couch next to Rob and talking up a storm, and rolled to his right side!
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."
My 3 Boys!!!
About my blog
This blog is about me and my family.
Wife to Robert Conrad, and Mommy to Tommy, William, Micah and our latest edition Sydney! Tommy is my bouncing/skipping/swimming/reading 5 year old, loving life and having fun, William (3) is our happy smiling laughing boy loving life and his brothers, William has CP, Micah (3) is our happy go lucky boy, walking/running/swimming/tooth brushing easy going tender hearted boy, Micah has a Congenital heart defect Atrial Septal Defect ASD. Sydney our latest addition adds a girl to our crew of boys.
Two roads diverged in a wood, and I-- I took the one less traveled by, And that has made all the difference
Wife to Robert Conrad, and Mommy to Tommy, William and Micah! Tommy is my bouncing/skipping/swimming/reading 3 year old, loving life and having fun, William is our happy smiling laughing boy loving life and his brothers, William has CP from a birth injury, Micah is our happy go lucky boy, walking/running/swimming/tooth brushing easy going tender hearted boy, Micah has a Congenital heart defect Atrial Septal Defect ASD.