Micah has been home from the hospital for 2 weeks now and gained one pound in the first week. He's not due to return to the pediatrician till his 2 month checkup. Scheduled for May 12th. Currently he's doing a lot of eating and sleeping and growing, all things a baby should be doing. Micah is nursing well, and sleeping through the night 4-5 hours at a time.
Lydia (me), I went to Lonestar baby today and bought 2 car-seats we will use these for Tommy and Micah, and they are smaller and will allow 3 car-seats across the back seat of the car. Lydia is pumping milk for William and has a freezer full at home and the hospital has plenty too. Lydia called today and made appts for Tommy's 2 year checkup and also for William and Micah's 2 month checkups.
Ok now for the update everyone's been looking for (William Josiah), and part of the reason we haven't had an update in a while. It's hard to process the information when your told your child needs to have surgery. Luckly nothing is urgently needed, so we've have had time to be angry and mad, and deal (you know all the stages of normal grief) with the fact that William will be home sooner rather than later by getting this surgery. (Hopefully max 2 weeks, and he will be home.) We were told last week that they wouldn't do the swallow study it's too dangerous, and that they recommended a G-Tube and Nissen Fundoplication. The G-Tube is to feed him, and the Nissen, is to prevent him from refluxing his food, and then asperating on the reflux. We realize the G-Tube is necessary, but are hoping to avoid the Nissen if possible, but probably not, but we've asked the doctors this week if they will do a swallow study just to verify that it is necessary, and they've agreed. The swallow study will be tomorrow. Based on the results from the swallow study they will proceed with the needed surgery(ies), and it will be scheduled depending on the availability of an OR/Anesthesiologist, and Surgeon. We have a meeting with the doctors and others from the hospital to ask our questions tomorrow at 9am. I'm sure I've forgotten to explain things as I'm not posting this when the news was fresh for me, so if you feel I've left something off please feel free to ask questions and I'll answer with more details.
In other news on William: He is doing well in his own crib and is maintaining his temperature great, and moving around more and more each day. His muscle tone is now recovering to that of a newborn and we expect it to continue. He is also coughing and gaging more frequently, along with sneezes too. He's also having periods of being very wide awake and alert. He makes good eye contact and also seems to track somethings. His movements are looking closer and closer to those of his brother Micah, and he's improving daily. Also today he's graduated to only having the chest probes to track breathing and heart rate, the foot probe for heart beat and O2 saturation has been removed! Yeh! One less wire. He's currently being fed 52 cc every 3 hours (a little less than 2 oz). I think that's about it, I'll post more later as I need to get to bed for our meeting in the am.