Got Tommy's allergy Tests back, and it's off the charts in may areas, He can eat: chicken, Lamb, Pork, Beef, No Grains, No Nuts, Fruits (except melon, and Grapes), a few veggies, No beans. The Doctor said his results compare to kids she sees with autism and sever ADHD. We have to meet with a nutritionist and do more test on URINE and STOOL.
Doctor says he has a leaky gut and can't absorb what he is eating properly.
And we have to do digestive enzymes with each meal, and we'll figure out from the urine and stool what we need to supplement with.
William's wheelchair was recently adjusted because he's grown. He's now on some of the last settings for the seating system, and will need a new seating system if he grows between his hips and knees. His weight is currently 25lbs 4oz and 36" tall. He's only an inch shorter than Micah and about 4 lbs lighter.
Also, his wheelchair in the new settings is too heavy for me, or too big. I can no longer lift it into the vehicle (about 3 feet off the ground), so I'm looking into a lift for the exterior of the vehicle to hold the chair so we can still take it with us when we go out. These turn out to be quite expensive, and insurance doesn't cover them at all. Here's a link to the one that best fits our vehicle. The cost for the lift would be about $1700 + $300 for having the hitch installed. So about $2000.
I haven't posted in a while because things have been going well and I didn't have much to say. Our GI doc visit recently went well he said William had gained 2 lbs since our last visit, and was a good weight. He said this is how we want to keep him. We don't want him to get fat, we want to keep him lean and muscular.
I just got some switches for William and he loves them, with them I also got some battery interrupters, but then noticed a toy we already LeapFrog Fridge DJ had modified for a switch was $66 modified 19.95 on amazon with free shipping if you have prime shipping. I took the toy apart and modified it with part of the battery interrupter for free, I did have to solder some parts inside the toy to get it to work where the switch pushes the button instead of just using the battery interrupter.
Can't believe it's $45 EXTRA to purchase a toy already modified...
April after I was laid off William caught a stomach bug, and ended up in the hospital dehydrated, then he got better gained 2-3 lbs, then caught a really bad cold and ended up back in the hosptial with pnemonia, then we were discharged, and had a sick nurse, and caught another cold, had bronchitis 2 weeks later and almost back in the hospital, but were able to treat it at home and 2 and half weeks later he's finally eating again and doing well, and gaining weight again.
Yes the dog was found...sorry I haven't posted sooner. Animal services showed up at our door at 8pm and said they had him at the shelter and had just scanned his chip. Please CHIP your dogs!
When I was young, I'd often say, I'd like to be a mom someday While playing with my baby doll, I thought that job's not hard at all
I'd have a baby, maybe two, a girl in pink...a boy in blue Well I grew up and sure enough, I'm now a mom and gosh it's tough
The baby that was sent to me, was born with disabilities At first I'm frightened through and through, there's much to learn to care for you
This wasn't in my plans at all, when I was young and played with dolls Your mind and body were so weak, you might not ever walk or speak
So much special care required, I'm often scared and often tired As months and years go slowly by, I smile a lot but sometimes cry
To watch you grow and not complain, though you endure your share of pain Oh, how I'd hold you and I'd pray, that you'd be healed and whole someday
But I knew that was not to be, not physically or mentally And so I taught you best I could, your progress wasn't very good
But then one day I realized, as I gazed into your loving eyes That I had learned so much from you, determination...courage too
A love so unconditional, it floods my soul and always will I'm proud to say I gave you birth, for you're an angel here on earth.
God Choose a mother for a "Special" child
Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."
William's Wheelchair Lift Fund Raiser
My 3 Boys!!!
About my blog
This blog is about me and my family.
Wife to Robert Conrad, and Mommy to Tommy, William and Micah! Tommy is my bouncing/skipping/swimming/reading 3 year old, loving life and having fun, William is our happy smiling laughing boy loving life and his brothers, William has CP, Micah is our happy go lucky boy, walking/running/swimming/tooth brushing easy going tender hearted boy, Micah has a Congenital heart defect Atrial Septal Defect ASD.
Two roads diverged in a wood, and I-- I took the one less traveled by, And that has made all the difference
Wife to Robert Conrad, and Mommy to Tommy, William and Micah! Tommy is my bouncing/skipping/swimming/reading 3 year old, loving life and having fun, William is our happy smiling laughing boy loving life and his brothers, William has CP from a birth injury, Micah is our happy go lucky boy, walking/running/swimming/tooth brushing easy going tender hearted boy, Micah has a Congenital heart defect Atrial Septal Defect ASD.
