Friday, we changed the plan to try for stamina of doing 3 back to back feedings. So it was decided that instead of doing an 11am feeding we would do 5pm, 8pm, and 11pm. So at 5pm Speech (Jennifer) did the the feeding, she called to report to me that he did 60 cc in 20 min. YEH!! It's wasn't just a freek thing for Mommy. Then I was there for the 8pm and 11pm feeding and he did 60cc in 17 min for the 8pm feeding another YEH!!!!! And at 11pm he was a little disorganized and worn out, and he still did 60cc but in 30 min still YEH!!! They will gavage the reset of the feedings tonight and we'll see to morrow what the plan now will be.
Also, Williams weight tonight was 6# 3.8oz (+1.2oz from last night).
Keep praying. The doctor Friday mentioned that he no longer needs the Fonduplication surgery, but she still suggests (depending on the weekend) the we do the G-Tube surgery so he can come home quicker. So please keep praying he knocks everyones socks off this weekend and makes great strides forward. We meet with Dr Lucena tomorrow to discuss the plans for moving forward and getting him discharged. She even mentioned that he may possibly be able to discharge next week.
a. he's not taking the fortification by mouth (so he needs to be able to tell us how much he needs to eat, or gain weight on only breast milk feedings.)
b. he's on medication that's given via ng-tube, he will probably need to take this medication orally, and he's hypersensitive to change in taste, the only thing he really likes in his mouth is breast milk, he doesn't even like the sugar water they have to dip his paci in.
c. More stamina to finish more feeds so we don't need a g-tube.
In other news I met today with the occupational therapist and speech therapist that we will be working with upon discharge. They are thrilled with the progress he is making so far, and can't wait to begin working with him upon discharge. They saw very positive things with him today, and are confident that he will be greatly helped by their therapy, and they believe that he will be able to nurse (they will help me get him to the breast), and also help his hypersensitivity. They worked with the conjoined twins who at two were not eating anything, and they were eating lots of stuff after working with them, and now eat almost anything.