3 years ago
Friday, July 31, 2009
Thursday, July 30, 2009
Sunday, July 26, 2009
Saturday, July 25, 2009
Tommy, what did you do today? (Last Friday)
I played at mommy's friends house.
I throw sand.
I throw sand at everybody else.
I be good al the times.
I went there and said good bye and went home.
Throw sand.
I ate an orange.
I throw sand.
I throw sand at everybody else.
I be good al the times.
I went there and said good bye and went home.
Throw sand.
I ate an orange.
Sunday, July 19, 2009
Thursday, July 16, 2009
A friend sent me a great link for our home schooling
This link has a great list of what we are trying to do for home schooling and things we are doing with Tommy (now) and the boys (slightly now but more later). If you ever need ideas for books for presents there's a great list on this page and as of now all I have is the online ones. Now to figure out how to get outside even more!
http://amblesideonline.org/00.shtml
http://amblesideonline.org/00.shtml
Wednesday, July 15, 2009
Micah
http://www.youtube.com/watch?v=nf29VIms284
Lydia Conrad
Mommy to Tommy (3yr 3/06), William & Micah (1yr 3/08)
Lydia@conradzone.com
http://conradzone.blogspot.com
MDCP
I called the MDCP people today to see about the Money follow the person option, and they assigned me a case worker and said I should hear from the case worker in 2-3 weeks.
Micah was babbling in the back seat
I heard him say "William, open up, AWhhh" This is often what we tell William when we're trying to feed him.
My baby forever and ever
I asked Tommy if he could be my baby forever and ever he told "I can't I have to grow up and be a Train driver!"
Tuesday, July 14, 2009
I was in tears today...
I called around to insurance, and Home Health care providers trying to get someone who could provide better care for William, and also some help with his care, as I estimate I spend 4-6 hours a day feeding him, probably should be more, and he can eat so it's not right to do surgery for him just because I don't have the time. I was in tears when I reached a pediatric home health provider after 20+ minutes on the phone with insurance only to find a provider that doesn't do pediatrics. The talked to me and referred me to a few providers that do pediatrics. I called the first one, told them our story about William eating 2oz in 9.5 hours, and that we need some assistance with his care but aren't sure how to get insurance to cover it. They said they would help and took my information. I was in tears while giving them my information because I finally found someone who could help. We talked and they are going to ask for up to 70 hours a week of PDN (private duty nursing) for William, and gave me what I needed to have my doctor fax to them. Orders for up to 70 hours, medical information, letter of medical necessity.
Saturday, July 11, 2009
Tommy Reading
We recently checked out some train books from the library, and they've become part of bed time routine. One of the book has been simple enough that Tommy's been reading it from the first time we opened it. It's called "This Train", He loves it and has been so proud to show everyone how he can read every word! And he does a GREAT JOB!
Frustration with Back-Up Childcare
I took the kiddos to the drop in child care place on Thursday because our beloved sitter, and WE DO LOVE HER TONS!!! Was sick, I'm so sad she was sick! And Tommy had problems with behavior at the drop in...and hardly ever does with the normal arrangements :(. And William had ONE oz of bottle in the morning, and about ONE oz of food at noon :(, and a cracker in the afternoon! Then they dropped the bottle at the 4:30 feeding, and based on how he cried on the way home I'm sure he had NONE of that bottle. I called the Home Health people, the pediatrician, and our speech lady, to find if there was anything we could do to provide him better care on the days I work and have to use back up arrangements as it's not acceptable for him to eat only an ounce of food in the 9.5 hours I was gone from 7:30am - 5pm.
Home health gave us the name of a program we may qualify for MDCP - Medically Dependent Children's Program. And then the name of a person to call about doing one over night stay in a Nursing Home so that we can jump to the front of the line in the program. They are apparently the only ones that cover assistance and resbite care programs for children based on the only the child's income, and Medical Need.
Home health gave us the name of a program we may qualify for MDCP - Medically Dependent Children's Program. And then the name of a person to call about doing one over night stay in a Nursing Home so that we can jump to the front of the line in the program. They are apparently the only ones that cover assistance and resbite care programs for children based on the only the child's income, and Medical Need.
Micah's new Diagnosis
Micah had a Heart Murmur at his last check up, and as such it is normal for them to refer to a cardiologist for review testing to verify if the murmur indicates anything significant. At the Cardiologist they found a Moderate sized Atrial Septal Defect (ASD).
At about 3 years of age findings indicate if the defect will be large enough to require closure, ore small enough to never need closure. At this point there is no required restriction or precautions and they want to follow up in a year.
At about 3 years of age findings indicate if the defect will be large enough to require closure, ore small enough to never need closure. At this point there is no required restriction or precautions and they want to follow up in a year.
The Road Less Traveled...
Two roads diverged in a yellow wood,
And sorry I could not travel both
And be one traveller, long I stood
And looked down one as far as I could
To where it bent in the undergrowth;
Then took the other, as just as fair,
And having perhaps the better claim,
Because it was grassy and wanted wear;
Though as for that the passing there
Had worn them really about the same,
And both that morning equally lay
In leaves no step had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads on to way,
I doubted if I should ever come back.
I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I--
I took the one less traveled by,
And that has made all the difference
...Robert Frost
The last 3 lines say it all....
And sorry I could not travel both
And be one traveller, long I stood
And looked down one as far as I could
To where it bent in the undergrowth;
Then took the other, as just as fair,
And having perhaps the better claim,
Because it was grassy and wanted wear;
Though as for that the passing there
Had worn them really about the same,
And both that morning equally lay
In leaves no step had trodden black.
Oh, I kept the first for another day!
Yet knowing how way leads on to way,
I doubted if I should ever come back.
I shall be telling this with a sigh
Somewhere ages and ages hence:
Two roads diverged in a wood, and I--
I took the one less traveled by,
And that has made all the difference
...Robert Frost
The last 3 lines say it all....
Thursday, July 2, 2009
William eating
William ate Oatmeal, and tortillas and cheese yesterday
Today he had some pees and pork roast
He's wanting to have what everybody else is eating, he's taking bites and chewing his food, occasionally he looses it, but if you poke it back in he eventually gets it and swallows. This is GREAT progress for him! He's also making more noises, and different noises (great progression towards speech!)
I'm excited what this last week has brought for him!
He's also trying to crawl, following commands about which arm to move, wanting to crawl and move.
He loves dancing with Tommy, and floating in the water of the pool, and joining right in with his brothers!
Today he had some pees and pork roast
He's wanting to have what everybody else is eating, he's taking bites and chewing his food, occasionally he looses it, but if you poke it back in he eventually gets it and swallows. This is GREAT progress for him! He's also making more noises, and different noises (great progression towards speech!)
I'm excited what this last week has brought for him!
He's also trying to crawl, following commands about which arm to move, wanting to crawl and move.
He loves dancing with Tommy, and floating in the water of the pool, and joining right in with his brothers!
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