Friday, September 19, 2008

Nap Time!


IMG_7097.JPG, originally uploaded by conradzone.

Tommy


IMG_7085.JPG, originally uploaded by conradzone.

I can't believe how much older he's looking!

So Cute!


IMG_7076.JPG, originally uploaded by conradzone.

Just had to post this one too!

Airplane


IMG_7061.JPG, originally uploaded by conradzone.

I have a similar picture of Tommy at this same age in an airplane pose too! So Cute!!!

Micah Sitting!


IMG_6986.JPG, originally uploaded by conradzone.

Look ma all by myself! Micah sat today for the first time all by himself! He went from on his tummy to sitting all by himself! It was when we were at the balloon festival and sitting on a blanket, all of the sudden I look over and Micah is in a full sit!

William in the BUMPO!!!


IMG_6938.JPG, originally uploaded by conradzone.

William just started in the bumpo yesterday, and today he even did better!! Later tonight he even sat unsupported for several seconds!!! (Right by me of course

Thursday, September 18, 2008

Micah Trying to Sit

My Bad I posted this video, and forgot to THANK the wonderful sitter who is watching and carring for with great love 5 kiddos, and she does a GREAT JOB!!! She recorded this video for us! THANK YOU COURTNEY!!!

William's Progress Video

Haley my niece at 18 months

Wednesday, September 17, 2008

Just a teaser....

I've got videos coming....

Micah almost sitting
William for the past 3 weeks so you(I) can see progress

and William I'm recording video every week so I can see progress, because it's hard to tell when your around him all the time.

Sunday, September 14, 2008

New Routine

We've been working on our new routine around here. I've started back at work, and the kids are getting used to the new/old sitter watching them. Courtney watched Tommy when he was 3-9 months old, and she's coming to our house and watching all the kids (she brings her 2 with her) and does a great job with everybody, and Tommy has a play mate. Also Tommy has started talking a lot more. This week will be our first week on our new regular schedule as our therapy settles into a more routine regular time. Also we will have a new PT therapist this week, as the one we did the evaluation with isn't available at the time we needed, so our Therapist name will be Lydia B. Micah is really getting up on all 4s all the time now and inching forward. I expect him at any time to crawl all the way across the room.

Sunday, September 7, 2008

William drank a record 38 oz yesterday....

It's a good thing I rented the hospital grade pump, was in the car pumping today and only got 1 oz, then when we got to our destination I pumped for 12 min after 12 on 12 off and 12 on in the car, and got 8 oz with the hospital grade pump, I really felt like I was struggling to keep up with his demand all day!

Friday, September 5, 2008

Thursday, September 4, 2008

ALL GREAT NEWS!

(all about William again), and this will be really quick as I'm tired:

1. William's eye is all better!
2. William's weight is right on track (we do have to write down what he eats so we offer that last feeding if he needs it).
3. She's working on the referral we asked her for to Scottish rite!!!
4. She gave us the prescription we needed for a breastpump (we had to rent a hopsital grade to maintain proper supply).

Other stuff:
5. PTs say he looks better
6. We've gone down a little on his med dose
7. My mom's been great help and great company
8. I started work and the sitters and kids did great for the first week
9. Micah is up on all 4s going backwards
10. Had a great labor day with the family.
11. ECI PT we got is GREAT she really explains things well, and can come every week!!!
12. It was great to see my Dad over the long weekend.

I think that's all ...I've got some pictures of bath time and this past weekend and plan to download those from the camera soon so keep checking back.

Thursday, August 28, 2008

Lots of stuff happening this week.

Well Tuesday I went to the pedi and got a weight check for William. He was 12# 5.5 oz (up from 10#13.5oz) and HC of 16.25in (up from 15.5) and 25.5" long (same). This is GREAT! it's been about 3 weeks since the last weight check. Micah in his clothes was about 17# 5oz. So they are maintaining the 5# gap.

Wednesday we had therapy PT from 11-12, and that went great, lots of stretching and getting the eyes to move to the left. Then that same afternoon we had OT with ECI at the house, and that went fine also, some more of the same.

Then Thursday am when I gave him the 5am dose of medicine he was in the fetal position (normally legs are straight and hands are out), so that's a HUGE improvement, and one hand was also up by his mouth. He's never really figured out how to bring his hands to mid line, much less to his mouth, so again that's a wonderful improvement too! Thursday 11am we had our CST session, with Sally Fryer (PT that worked with the conjoined Egyptian twins), and during the session we were playing with Micah and Micah was giving William kisses on the cheek, and Micah was smiling about it and William was smiling about it, until one of the times we went to give kisses, Micah's arm flew up and he put his hand on Williams cheek instead, only his fingernail went in William's eye (William's reflexes are slower due to his injury), and William cried this soft cry and kept his eyes closed for a while, and when he did open them finally something just didn't look right to me, so when we finished our session I called an optometrist, and they said with the situation and him being so young we should go to
Children's or our Pediatrician, well the Pediatrician had just gone to lunch and we couldn't get a hold of them, so we headed down to Children's, there was no line, so we checked in, and saw a doctor within about an hour. The resident didn't see anything, so she left and came back with the attending, she brought a dye, and light to look at his eye, sure enough he did scratch the eye ball, and we needed to put ointment on for 5 days and follow back up with our pedi in a week. The pediatrician finally returned our message as we were leaving the hospital, so we scheduled the follow-up appointment. And headed home. Then we called the LC to check on getting some parts for pumping at work since I start back to work on Sept 2nd. This way I can keep a pump parts at work and a set at home, and can never forget them this way. She had them, so we drove to her house to pick them up, and then back home again and stopped at Tom Thumb where we ran in to Grandma to fill our prescription for the eye ointment.

Wednesday, August 27, 2008

Sadie

Tuesday, August 26, 2008

It is with saddness that I report...

Sadie loved her new home dearly and they took such good care of her. But I got a call today from a vet in Lubbock that she was hit by a car. They took her to bed every night, took her on picnics, she was always in their lap, if they opened the door she was on a leash. So Please pray for Emily Williams, and her dad, they both loved that dog dearly!

Apparently Maintence was fixing something in the appartment, and let her out of the crate and she darted into traffic and was instantly killed.

They called me because she was micro-chipped.

Monday, August 25, 2008

Happenings...Life...Thoughts....

Everybody tells me Wiliam looks like he's getting big, and I agree he does. I haven't made it by the pedi's to get another weight though, and I"m officially pulling 0-3 months clothes out of our closet. Both boys are still fitting 3-6 month clothes, but Micah easily wears 6-12 months cloths also.

I called Scottish Rite, and they said he needed a orthepedic problem to be a candidate, and he has the problems with torticallis, so I put a call in to our pedi to get a referral, and haven't heard back. At first she said we needed to talk to the physical therapists, and chiropractors about that, but we're already doing that. So maybe.... I am still thinking it wouldn't be a bad idea to see a neurologist with more experience with CP cases, even if it doesn't end up being at Scottish Rite.

At our PT session last time they suggested I call an upholstery place to make a crash pad (where they put the foam blocks in a duve), for help propping him up in the posisitons he needs to be etc. So I called one today and they said they'd be happy to help and had tons of scraps. So we may "swing" by down town off industrial to pick up foam pieces, for our crash pad.

Williams still eating average over 30 oz a day. I've got a call in to the LC to see where he should be (oz per day).

Micah is still scooting, it appears he can now go both forward or back, but doesn't have much control over which way, he's still coordinating that, but he is always trying to MOVE. He's also got quite the since of humor. He finds sneezes laughable, and loves making faces (usually smiling) at anyone who will listen or pay attention.

Our day today consisted of a play date with the local MOMs Club at 10am followed by a quick trip to the store for this weeks groceries, (I'm still doing a meal plan for the week and I'm going on 6 home cooked (weekday) meals in a row. Might I add the trip to the store was with 2 babies and a toddler, we got most of what we needed, but William screemed at me the whole time because I was a bad mommy and forgot his milk at home, and it was time for his next dose too.

Then we went home unloaded groceries, feed 2 babies, put everybody down for naps, put the groceries away, gave william his meds, (not necessarily in that order), made lunch, fed everybody lunch, handled a time out and a tantrum, then there was peace till about 4 when babies and toddlers started to wake up while I was in the middle of preparing dinner. Yes we praise God for 3 hour naps around here still!

Then we had floor time and bottles, and snacks while we waited for Daddy to get home so we could eat our dinner. After dinner we had some play time and quickly headed to bed. I nursed the baby, fed the other one a bottle, and then layed down with the toddler for a few minutes.

Sleeping boys

Wednesday, August 20, 2008

Mother of a "Special" Child

When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all

I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough

The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you

This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak

So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry

To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday

But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good

But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too

A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.

God Choose a mother for a "Special" child

Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjotie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But she has patience?" asked the angel.

"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

And what about her Patron saint? asked the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."