Well Tuesday I went to the pedi and got a weight check for William. He was 12# 5.5 oz (up from 10#13.5oz) and HC of 16.25in (up from 15.5) and 25.5" long (same). This is GREAT! it's been about 3 weeks since the last weight check. Micah in his clothes was about 17# 5oz. So they are maintaining the 5# gap.
Wednesday we had therapy PT from 11-12, and that went great, lots of stretching and getting the eyes to move to the left. Then that same afternoon we had OT with ECI at the house, and that went fine also, some more of the same.
Then Thursday am when I gave him the 5am dose of medicine he was in the fetal position (normally legs are straight and hands are out), so that's a HUGE improvement, and one hand was also up by his mouth. He's never really figured out how to bring his hands to mid line, much less to his mouth, so again that's a wonderful improvement too! Thursday 11am we had our CST session, with Sally Fryer (PT that worked with the conjoined Egyptian twins), and during the session we were playing with Micah and Micah was giving William kisses on the cheek, and Micah was smiling about it and William was smiling about it, until one of the times we went to give kisses, Micah's arm flew up and he put his hand on Williams cheek instead, only his fingernail went in William's eye (William's reflexes are slower due to his injury), and William cried this soft cry and kept his eyes closed for a while, and when he did open them finally something just didn't look right to me, so when we finished our session I called an optometrist, and they said with the situation and him being so young we should go to
Children's or our Pediatrician, well the Pediatrician had just gone to lunch and we couldn't get a hold of them, so we headed down to Children's, there was no line, so we checked in, and saw a doctor within about an hour. The resident didn't see anything, so she left and came back with the attending, she brought a dye, and light to look at his eye, sure enough he did scratch the eye ball, and we needed to put ointment on for 5 days and follow back up with our pedi in a week. The pediatrician finally returned our message as we were leaving the hospital, so we scheduled the follow-up appointment. And headed home. Then we called the LC to check on getting some parts for pumping at work since I start back to work on Sept 2nd. This way I can keep a pump parts at work and a set at home, and can never forget them this way. She had them, so we drove to her house to pick them up, and then back home again and stopped at Tom Thumb where we ran in to Grandma to fill our prescription for the eye ointment.
3 months ago