Will post a picture(S) soon, but this update was needed, before the pictures, and my trigger finger his been a little busy operating a remote stop button to get a picture.
Yesterday we picked up William's power chair. The first time we put him in it he did so awesome mama was near tears. We had to do some minor adjusting and positioning, and he was so patient with us. Then it was time to turn it on! He immediately drove straight forward, and turned to go out the door (except we weren't going out the door, it's TEXAS so we had to stay inside), then we headed to drive around a path on the outside of a large room, the room was roughtly square, had 3 offices on the far side away from the wall of windows. In the center of the room was several wheelchairs waiting delivery, or trial. Around the room was a path about large enough for the power chair and one person along side. The power chair is a silvery blue with red race car embroidered on the seat. The chair had head controls he pushes back with his head to go forward, turns his head to the left or right to navigate in those directions. Later we will add a toggle where he can power tilt the chair, or switch to reverse, or increase his speed. Also, there's an attendant control that can move him in other directions by the person walking behind him. It cruises along at a nice slow crawl while inside, and can go faster for outside. We have a remote stop button which is for use to prevent broken windows or falling off curbs while learning to drive. William navigate past the windows, and to the first corner with ease, straight shot, then surprising to everybody navigated the first turn on his own to the left side (right is the easiest side for him to turn, but he showed no problems with left on the corner, then drove perfectly straight again to the other side where the offices were. There were 3 offices each with a door and window. The first door was to the right of the path we're following with the window for the same first office just to the left of the path. At the offices he crashed into the window (stopped by remote stop), Besides who bothered to tell this 3 year old you can't just walk/drive thru windows. So then we repositioned him and started him again. He drove straight and into the first door of the next office and up to her table, and waved hi to the person in that office. Then we backed out him out of the office and sent him on his way again. Again he tried to drive into the 2nd office window, We corrected his path again, and he drove straight into the next office and waved hi to the two people in that office. Next, we pulled him back and sent him on his way again, next he stopped at the window and waved to the people in that 3rd office thru the window, at that point we stopped and put him in his walker so we could make the final adjustments on the walker before taking it home. I was told over and over that he did better than most kids do on the first time BY FAR. And our therapist we showed today at home said he did better than lots of kids do after over a month.
I was so near tears that my baby could finally go, where he wanted that people can actually see he's trying to say HI because "HE" is the one DRIVING. HE HAD the intent, it wasn't just me saying, OH he's waving, when I saw it and no one else did, EVERYONE else could see He is DRIVING...HE CAN TELL WHERE he wants to go!!!
LOOK OUT World HERE WILLIAM COMES!
PPS I just have to say thank you to all the therapist that made this possible that believed in us when others didn't, and THANK YOU to Heather Pinkerton with United Seating formerly Rehab Specialties for suggesting we finally get him in one, and MAKING it happen, when I've wanted to for 18 months now or more. Thanks specifically to Bernadine, A'Donna, Yiesha, Lydia (another therapist (PT) who wanted to put us in one months ago), And many others! Thank you also to Family members who have offered up countless prayers for our dear William. Can't forget to Thank TEXAS MEDICAID, and UNITED HEALTH CARE for making it possible to 100% fund this vehicle which costs more than all 4 of our vehicles PUT TOGETHER!
Next: My hunt next is to get him a communication system where he can TELL us what he wants even if he can't TALK, that will be his voice and encourage him to talk.
2 months ago