I've been able recently to cut back on the Diazepam that I've been giving William (we also started reflux meds around the same time a couple of weeks ago). He was at 2.0mg 3x a day, and after we started the reflux meds I cut back to 1.7, then 1.5, and now yesterday we did 1.5 2x a day and I didn't give the 3rd dose because he still looked great! I'm probably going to cut it back even further to 1.2. He generally seems more awake, interactive, and moving more, also with him rolling over. Also, he's still napping, he's hungrier (that's a good thing), he's still happy and smiling most of the time. I remember before he started the medication he was very uncomfortable all the time, it wasn't till after the medicine he started smiling.
Last night William was playing with my hair and grabbing it, I'd release his hand and he would immediately do it again with a smirk on his face. I need to setup some net of toys for him to play under with things he can grasp like hair or beads so he has a spot to play.
I was thinking maybe a foam mat on the bottom (like memory foam) with PVC pipes around it going up to a net/plexi glass above with holes in it and toys tied hanging from that, some plastic hair, scarves, toys for him that are easy to grasp, some beads. Anybody have on old bed top liner/pillow top that they are getting rid of?
2 months ago