I was too busy worrying about William to post. William seems to have been stiffer this whole past week. We weren't sure why. We had therapy on Tuesday, and we saw Sally Fryer, the owner of the clinic for our CST and Megan for speech. Our speech therapy we spent the whole time arching and resisting the feeding, but she did give us a tip to try to keep the chin down and not hyper extended if we could to keep the air to a minimum. So that has helped some, but generally we've had alot of arching and stiffness. So at our CST session she mintioned he had a bit of toticollis and also asked what other therapy we are getting which I said none because ECI couldn't duplicate service, she said that she's a PT and that he needs PT (physical therapy) and OT (therapy) bad. She gave me a her card, and wrote on it "HE NEEDS PT" for me to give to ECI when they came on Wednesday.
ECI Came on Wednesday and she observed that he was much worser (is that a word) too. She took the card, and said something about getting someone to teach infant massage out, and also getting the PT (same people) to come out and evaluate him.
Then Friday evening I started to feel all achy, and stiff, and I was thinking if william felt half as bad this week as I did, then maybe that would explain all the stiffness.
This Saturday and Sunday I've got the LLL Conference, I've been excited to hear Dr Jack Newman speak, and tomorrow is Thomas Hale.
3 months ago