Tuesday, May 13, 2008

OT and ST appt Tuesday

We are finding lots of things/aversions in his therapy related to the hospital stay, like the bottoms of his feet are sensitive because of all the heal sticks he had, and he has a strong oral aversion to gloves on hands.  We are using other tools to work with him during the speech portions, and when it comes to using hand in the mouth for some of the treatment they've said if it's ok with me they can use a well scrubbed bare hand.  I'm find with that, I just want him to get better and what ever it takes.  I'm suppose to use the nuk brush at home on his lips and gums before feedings and then also massage his feet with lotion to put good feelings with touching the feet.  


Anonymous said...
This comment has been removed by a blog administrator.
Tricia said...

Have they said anything about brush therapy? They had us do that with Cadenne because she had a hypersensitivity in most areas... you use the scrub brush on limbs and back combined with joint compressions. Maybe something to mention to the ST? We're seeing no signs of hypersensitivity in Cadenne now....

Gail said...

dear anonymous,
It is fine for you to have your own oppinions regarding Lydia's parenting style. I would think as a friend your energies would be better recieved if instead you were encouraging her and not critisizing her. All new parents need help and support, and under the circumstances that she and Rob are in they need as much support as they can get. As if she doesn't have enough to be worried about she has to be worried about who is the anonymous chicken that doesn't have the guts to sign their name. Shame on you Anonymous.

Rebeccalynn_dj said...
This comment has been removed by the author.

Mother of a "Special" Child

When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all

I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough

The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you

This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak

So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry

To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday

But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good

But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too

A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.

God Choose a mother for a "Special" child

Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjotie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But she has patience?" asked the angel.

"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

And what about her Patron saint? asked the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."