Well Tuesday I went to the pedi and got a weight check for William. He was 12# 5.5 oz (up from 10#13.5oz) and HC of 16.25in (up from 15.5) and 25.5" long (same). This is GREAT! it's been about 3 weeks since the last weight check. Micah in his clothes was about 17# 5oz. So they are maintaining the 5# gap.
Wednesday we had therapy PT from 11-12, and that went great, lots of stretching and getting the eyes to move to the left. Then that same afternoon we had OT with ECI at the house, and that went fine also, some more of the same.
Then Thursday am when I gave him the 5am dose of medicine he was in the fetal position (normally legs are straight and hands are out), so that's a HUGE improvement, and one hand was also up by his mouth. He's never really figured out how to bring his hands to mid line, much less to his mouth, so again that's a wonderful improvement too! Thursday 11am we had our CST session, with Sally Fryer (PT that worked with the conjoined Egyptian twins), and during the session we were playing with Micah and Micah was giving William kisses on the cheek, and Micah was smiling about it and William was smiling about it, until one of the times we went to give kisses, Micah's arm flew up and he put his hand on Williams cheek instead, only his fingernail went in William's eye (William's reflexes are slower due to his injury), and William cried this soft cry and kept his eyes closed for a while, and when he did open them finally something just didn't look right to me, so when we finished our session I called an optometrist, and they said with the situation and him being so young we should go to
Children's or our Pediatrician, well the Pediatrician had just gone to lunch and we couldn't get a hold of them, so we headed down to Children's, there was no line, so we checked in, and saw a doctor within about an hour. The resident didn't see anything, so she left and came back with the attending, she brought a dye, and light to look at his eye, sure enough he did scratch the eye ball, and we needed to put ointment on for 5 days and follow back up with our pedi in a week. The pediatrician finally returned our message as we were leaving the hospital, so we scheduled the follow-up appointment. And headed home. Then we called the LC to check on getting some parts for pumping at work since I start back to work on Sept 2nd. This way I can keep a pump parts at work and a set at home, and can never forget them this way. She had them, so we drove to her house to pick them up, and then back home again and stopped at Tom Thumb where we ran in to Grandma to fill our prescription for the eye ointment.
Mother of a "Special" Child
When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all
I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough
The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you
This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak
So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry
To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday
But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good
But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too
A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.
God Choose a mother for a "Special" child
Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjotie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."
3 comments:
Whew, it wears me out just reading about all that you were doing!! Sorry to hear about William's injury, but glad that it will heal. It was good to see you at the store. Love you.
I am glad William is doing better. I am sorry he got a scratch on his eye.
Good Job spotting something wasn't right Lydia! I am always impressed with that about you. You are amazing. Glad William is going to be ok.
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