Wednesday, May 27, 2009

Nana and All 5 Grandkids

CRW_9566 copywm.jpg, originally uploaded by conradzone.

Easter Sunday!

Wednesday, May 20, 2009


Tommy skinned his knee, and Rob asked him if he needed mommy to kiss it and make it feel better, to which he said "No, that doesn't help, God will make it better"

The faith of a small child....

I love that child!

I sat by the lake and looked at the sky...

and as I looked a fly when by. (a quote from one of our favorite books).

Tuesday, May 19, 2009

Cutting back on the Medicine

I've been able recently to cut back on the Diazepam that I've been giving William (we also started reflux meds around the same time a couple of weeks ago).  He was at 2.0mg 3x a day, and after we started the reflux meds I cut back to 1.7, then 1.5, and now yesterday we did 1.5 2x a day and I didn't give the 3rd dose because he still looked great!  I'm probably going to cut it back even further to 1.2. He generally seems more awake, interactive, and moving more, also with him rolling over.  Also, he's still napping, he's hungrier (that's a good thing), he's still happy and smiling most of the time.  I remember before he started the medication he was very uncomfortable all the time, it wasn't till after the medicine he started smiling. 

Last night William was playing with my hair and grabbing it, I'd release his hand and he would immediately do it again with a smirk on his face.  I need to setup some net of toys for him to play under with things he can grasp like hair or beads so he has a spot to play. 

I was thinking maybe a foam mat on the bottom (like memory foam) with PVC pipes around it going up to a net/plexi glass above with holes in it and toys tied hanging from that, some plastic hair, scarves, toys for him that are easy to grasp, some beads.  Anybody have on old bed top liner/pillow top that they are getting rid of?

Monday, May 18, 2009

Micah cheesing for the camera!

CRW_9779wm.jpg, originally uploaded by conradzone.

Ball Pit

CRW_9782colorwm.jpg, originally uploaded by conradzone.

Playing in the Ball pit!

CRW_9784wm.jpg, originally uploaded by conradzone.

Here's William's chance to play in the ball pit. He did enjoy it, I just love the colors in this picture!

Sunday, May 17, 2009

William just ROLLED OVER!!!!

William just Rolled over for the first time, it wasn't a flop, as he's so great at doing it was a true roll!!! He was laying on the couch next to Rob and talking up a storm, and rolled to his right side!

Saturday, May 9, 2009

Ball pit

Now we need more balls

Friday, May 8, 2009

Hangin with Deuce

Robert Conrad Southwest Party Factory, LLC. dba: Party America Frisco 3333 Preston Road Suite 1200 Frisco, TX 75035 972-668-1961

Watching baseball with Daisy

Robert Conrad Southwest Party Factory, LLC. dba: Party America Frisco 3333 Preston Road Suite 1200 Frisco, TX 75035 972-668-1961

Sunday, May 3, 2009

Saturday, May 2, 2009

Couple of recipes I made

I made these tonight going for high calorie as William has trouble gaining weight:

Avocado Pinto Benas

3 avocados medium
1/2 cup EVOO Extra Virgin Olive Oil
1 cup Pinto Beans Cooked boiled with bacon grease and salt

Makes 16 1 oz Servings
Estimated Calories per oz: 100

Butternut Squash

3 Tbsp Brown Sugar
1 8oz Cream Cheese
1 1/2 cup Steamed Squash

Makes 16 1 oz Servings
Estimated Calories per oz: 68

Anything over 20 calories per oz is good as Breastmilk is 20 calories per oz.
Mommy to Tommy 2 yrs 3/2006 + William and Micah 3/2008

Mother of a "Special" Child

When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all

I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough

The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you

This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak

So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry

To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday

But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good

But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too

A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.

God Choose a mother for a "Special" child

Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjotie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But she has patience?" asked the angel.

"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

And what about her Patron saint? asked the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."