Wednesday, April 29, 2009

William Follow up at Gastro Doc

We went to the gastro doc today, and he said to keep doing the new medication for a week and see how it works, and to call him on May 11th, and if it's not helping they they will try a different medication, possibly one that does more gastro emptying.

Tommy's School

Tommy's been having fun at school. They said he's been a big helper, and very responsible. He really enjoys it.

Tuesday, April 28, 2009

Eye Doctor

We went to the eye doctor for William today. His eyes pull to the right, and I wanted to make sure we were doing everything we could be doing. He examined him, dilated his eyes, and examined the back of his eyes. Everything is normal for his condition. He wants to see him back again in 6 months. At this point all he can recommend is additional testing at the eye place in downtown...forgive me the name slips my mind at this time.

EGD Results

EGD Results showed reflux. We've started him on reflux medication. He's still not feeling well.

Wednesday, April 22, 2009

William had an EGD today.

They put him to sleep and then run a scope down his throat, take pictures and biopsies of his throat, stomach lower stomach and intestines. He tolerated it well, but was very stiff afterward. Everything looked normal, but we'll get the testing results in about a week.

Tommy Starts School on Monday

Tommy starts school on Monday. There will be 4 kids in his class 2 boys and 2 girls with 2 teachers. I'm excited! He will go Monday and Wednesday from 9:30-12:30.

Sunday, April 19, 2009

Bluebonnets 2009

3Brothers, originally uploaded by conradzone.

Blue bonnets are looking Great. Micah is entertaining himself, and Tommy is loving on William!

Monday, April 13, 2009

Dr Visit today

Tommy got to go to the res-bit program at his school today while we went to the GI doctor's appointment.

Dr looked at William and was very good with him, made him smile and treated him like any normal kid. We'll have to do a scope thingy to check his stomach, throat, and upper intestines to see if there is any problems. Since he's going to have to be out anyway for the GI thingy, were going to do an MRI on him since he's out anyway.

On another note we noticed Micah now has 7 teeth and is working on number 8 (2 more lower teeth.) He's also crusing the furnature a little more librally (ie holding on even less, and walking about 3/4 the way across the room now. Also he finds any loose items and they suddenly become crusing toys to push around the room (ie chairs at the doctors office).

Oh and Tommy this evening while I was cooking dinner decided I was a bad Girl and had to stand in timeout. So I stood there like a good girl (trying to be a good example) while daddy pleaded with Tommy to let me out of timeout so I could cook dinner.

After dinner Tommy went with me to get my tire hole looked at on my car. We put air in it and headed to discount tire. They checked it, and found a nail that had damaged the side wall, so they put the donut tire on because they didn't have any used tires that we could put on (and it was closing time when we pulled up). We'll call them tomorrow to see if they have any used tires.

Friday, April 10, 2009

BTW .... Teeth

William now had 2 teeth. He just got another one today, he got the first one just after his birthday party.

Micah has 6 (4 on top and 2 on bottom). He got 2 just after thanksgiving, and 3 after christmas, and 1 he's been working on for a while.

Better Video of William Laughing

Off to feed william another bottle.

Wednesday, April 8, 2009

William Detailed Update.


ECI brought this chair by and I really like it, it's a little big for us still and he can still fall over it in, but it's much better than previous options. Also, our ECI told us that April is a great time to apply for equipment because it may take a while to be approved, and then by the time it's approved we'll have met our out of pocket and deductible etc, so what do I need? I'm looking at a kid kart special needs stoller possibly, something that we can take to family's houses so William can interact with others and participate sitting up. With him sitting in the chair more and being engaged with us, he's making more noises and trying to talk and even giggling (see the video below).

The nutritionist came by again today. Wiliam was 16lbs 11oz (up 11 oz from last time) This was a GOOD gain for the time period especially with him being sick and not eating well for most of the time. She's coming once a month till we get William back on the growth charts. She calculated that my avocado salad with honey mustard dressing and sesame seeds that I made William in the food processor is 100 calories an ounce. He needs about 1000 calories a day, and he gets between 600-900 from milk and oil we feed him. He gets oil 2-3 times a day (1 tbs with a dash of honey for flavor). Then he gets 2-3 8-10 oz bottles.

Gastro Doc:
Williams had some symptoms of reflux lately, arching, spitting up if laid down after eating, a puddle forming under his head if he's laid down, throwing up if the Diazepam doze is too low. Swallowing at random times. So we have an appointment on Monday to see the doctor that the Nutritionist recommended.

Eye Doctor:
William's vision has always pulled to the right pretty bad, and we've thought that we should take him to the eye doctor for a while, And his right eye seems to be the weaker eye, especially when he's sleepy. As well as he still has the Nastagnis(sp?) shaking of his eyes as he focuses (a normal symptom of the mediation he is on). So I made an appointment for Tuesday the 28th with a pediatric ophthalmologist.

Handicap Sticker:
I'm considering asking the doctors for a handicap sticker as if I'm out with all 3 kids it can be kinda tricky getting them all out together especially now that William has outgrown his baby car seat.

Monday, April 6, 2009

Bad Bad Blogger....sorry we've been having fun and I haven't been sharing!


William is Laughing!
We didn't capture the whole out giggle, but you get the idea!

Micah is taking steps, and really trying to communicate! (Insert pictures here...ya...bad mommy no pictures to put here...mainly because he's always saying "UP" to me and making me hold him and it's hard to hold a camera while holding a baby.

Tommy's going to start a preschool soon 2 days a week 6 hrs a week. 9:30-12:30 Monday and Wednesday. It's called the CC Relief Nursery, for families with more than 2 stressors to give us a break and positive role modeling for Tommy. Also they do breakfast, lunch, and snack, and better yet ITS FREE! They have 2 teachers and 2 volunteers for 8 kids!! Pray they get volunteers soon and as soon as they do they can start having classes monday and wednesday!
Also, Tommy is loving swimming and getting outside again! We've had a few warmer days and it's great. He helped his dad mow with the bubble mower, and they they both took a swim afterwards. Along with playing in the creek for hours (sorry papa, we got our cool new shoes all muddy, but mommy washed them) with daddy and having fun!

Mother of a "Special" Child

When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all

I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough

The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you

This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak

So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry

To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday

But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good

But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too

A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.

God Choose a mother for a "Special" child

Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjotie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But she has patience?" asked the angel.

"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

And what about her Patron saint? asked the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."