Monday, August 25, 2008


Everybody tells me Wiliam looks like he's getting big, and I agree he does. I haven't made it by the pedi's to get another weight though, and I"m officially pulling 0-3 months clothes out of our closet. Both boys are still fitting 3-6 month clothes, but Micah easily wears 6-12 months cloths also.

I called Scottish Rite, and they said he needed a orthepedic problem to be a candidate, and he has the problems with torticallis, so I put a call in to our pedi to get a referral, and haven't heard back. At first she said we needed to talk to the physical therapists, and chiropractors about that, but we're already doing that. So maybe.... I am still thinking it wouldn't be a bad idea to see a neurologist with more experience with CP cases, even if it doesn't end up being at Scottish Rite.

At our PT session last time they suggested I call an upholstery place to make a crash pad (where they put the foam blocks in a duve), for help propping him up in the posisitons he needs to be etc. So I called one today and they said they'd be happy to help and had tons of scraps. So we may "swing" by down town off industrial to pick up foam pieces, for our crash pad.

Williams still eating average over 30 oz a day. I've got a call in to the LC to see where he should be (oz per day).

Micah is still scooting, it appears he can now go both forward or back, but doesn't have much control over which way, he's still coordinating that, but he is always trying to MOVE. He's also got quite the since of humor. He finds sneezes laughable, and loves making faces (usually smiling) at anyone who will listen or pay attention.

Our day today consisted of a play date with the local MOMs Club at 10am followed by a quick trip to the store for this weeks groceries, (I'm still doing a meal plan for the week and I'm going on 6 home cooked (weekday) meals in a row. Might I add the trip to the store was with 2 babies and a toddler, we got most of what we needed, but William screemed at me the whole time because I was a bad mommy and forgot his milk at home, and it was time for his next dose too.

Then we went home unloaded groceries, feed 2 babies, put everybody down for naps, put the groceries away, gave william his meds, (not necessarily in that order), made lunch, fed everybody lunch, handled a time out and a tantrum, then there was peace till about 4 when babies and toddlers started to wake up while I was in the middle of preparing dinner. Yes we praise God for 3 hour naps around here still!

Then we had floor time and bottles, and snacks while we waited for Daddy to get home so we could eat our dinner. After dinner we had some play time and quickly headed to bed. I nursed the baby, fed the other one a bottle, and then layed down with the toddler for a few minutes.

1 comment:

Curdie said...

You are a very busy lady!

You are doing an amazing job, Lydia.

Mother of a "Special" Child

When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all

I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough

The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you

This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak

So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry

To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday

But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good

But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too

A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.

God Choose a mother for a "Special" child

Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.

This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjotie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But she has patience?" asked the angel.

"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

And what about her Patron saint? asked the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."