Monday afternoon we had the followup discharge visit with the Pediatrician, she weighed him, and checked his refluxes and range of motion, and briefly discussed how CP is a matter of therapy, and that's what we need to do is get all the therapy we can. He weighted 7#8oz (up from 7#5oz on Friday) And 7#1oz on discharge from the NICU. She looked at him said he looks pretty good considering, and said we would check weight again at the 2 month appt in a week. She also said to feed him as often as he's hungry. Try for every 3 hours, and watch his signals. Also, she said to make follow up appointments with the neurologist for when then need to follow up on him, so I will call them tomorrow.
Tuesday afternoon we had an appointment with the OT (again the OT and ST people we are seeing are those that worked with the conjoined egyptian twins IPT), who took a history of the birth, and events related, and also a history of his NICU stay, and then worked with him using cranio-sacral therapy. After the appointment his head (the frontal bone of his skull looked much better. It had a bad overlap before, and she said that a lot of his brain looked compressed, and that the therapy would allow it to expand on it's own. Also she mentioned that the frontal bones are right over the motor cortex of the brain and that helping those expand would allow the motor skills to improve. Also she mentioned that she does no manipulation of the bones, and that the pressure/touch they use is lighter than that of a nickel. He squirmed a little for the appointment, but fell asleep by the end. She said she would suggest 6-8 weeks of treatment at this time, and then re-evaluate at that time. Also, she said he's some of the youngest patients she's treated, usually she get kids when they are 4-5 months old or older because then they are showing some obvious delays, so it's good we are treating him even younger.
Wednesday morning we went to the new chiropractor that we'll be seeing. He did a scan of Williams spine and it showed Red/severe disturbances at the very top of his spine and also at the bottom of his spine near his sacrum. He then adjusted him, a lot of the bones in his skull were out (almost all of them), and then adjusted his neck, and then is lower spine and sacrum. Previous to the chiro visit and part of the reason for the visit William had been holding his head to the right side all the time and when he was in pain or discomfort, and had been doing so for weeks. I knew he needed chiro care much before he was discharged due to this. After he adjusted the neck William immediately turned his head to the left and fell asleep. We will go back on Saturday for another adjustment, but now I'd say his neck is 80% better, and he's eating better after his adjustment. Several of his reflexes after the OT and Chiro treatments are looking much more normal.
Also, Wednesday the home health nurse came by and checked on William. Did his vitals and weighted him. He was 7# 10oz up from 7#8oz on Monday. She will check on him again on Friday.
PS the underlined words at the top are links to more information.
Our look ahead (PS any help with tommy for appointments would be appreciated.):
Saturday: 9am Chiro appoinment for William (Rob is home to watch Tommy)
Monday: 8am Pediatrician again for twins 2 month checkup
Tuesday: 1pm William OT and ST appointment (Rob is home to watch Tommy)
Will have a standing appointment on Tuesdays for OT and ST probably around 2 or 3pm.
5 comments:
This is so amazing to see the power of the "alternative" therapies working on your son. I'm praying that God will give you the strength you need to keep on keeping on.
Let's not forget the reason he is alive is because of doctors and modern medicine.
I'm glad to hear that William continues to get better. The alternative therapies are making a big difference combined with the Western medicine that has its place, and I'm glad you are doing everything possible to improve him. His potential to recover is so much better when you're supporting those Western treatments since they are usually only partially successful.
Weel, let me just say that they sound like wonderful appointments.
As for "anonymous" and their little comment, don't let them offend you or upset you Lydia, they wern't even brave enough to leave a name before they offered up their narrow viewpoint.The reason William is alive is in part due to modern medicine but also due to him having a wonderful mommy who knew what she was doing and gave him the best possible start to his life.
I fully believe that the reason he is here is because God orchestrated for him to be here. If it weren't for God willing him to be here modern medicine could have done nothing. My heart aches for all the families that don't get the chance to witness a Miracle like I have with William, the families that don't get to hold their baby after he was nearly taken from them. Those who do everything they are suppose to, but still loose their darling child. We will never know this side of heaven why God allows some to stay and takes some home to him. William is truly meant by God to be here and be alive, and that has nothing to do with the tool of Modern Medicine that was used in his life, and to sustain his life.
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