Yes that's right William took 105 cc then we cut him off. That's 15 cc short of 2 feedings at once, or close to 4 ounces. Then at the next feeding he was comatose, wouldn't wake up, wouldn't suck, slept right through his diaper change. So he was gavaged and then at the 5am feeding he only took half. Took 65 at the 8am feeding, but then only took 43 at the next feeding. Minimum he needs to take 50, and max is his limit.
The doctor said he may move to full feedings on Thursday or Friday. He's getting 6 a day now, and not doing so well on 1-3 of them a day, but doing great on others. He needs more stamina, and needs to follow their schedule. So please pray he'll cooperate so he can come home. Also we still need to be gaining weight good. He gained 5 grams the day before yesterday and yesterday only gained 20 grams. He's up to 6#7.9oz, but needs to gain a little more than that each day.
I'm beginning to check into childcare for all 3 kiddos for when I go back to work, so if you know of anyone send them my way. I posted to the lists where I found the first two, and have a potential that doesn't live in the right direction, but it may end up working anyway because we only have one car that will fit all the children. I'm also looking into sitting services that can come to the house and watch the kiddos. Also it depends on what will work for William too. And I'm not sure what we're looking for exactly because I don't have William home yet.
Mother of a "Special" Child
When I was young, I'd often say,
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all
I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough
The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you
This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak
So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry
To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday
But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good
But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
determination...courage too
A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.
God Choose a mother for a "Special" child
Most women becaome mothers by accident, some by choice, a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjotie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."
1 comment:
Lydia,
I am so happy William is doing great and making remarkable improvements. My prayers are with your family. I would love to see new pictures of William posted.
Billie
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