Thursday, November 27, 2008
I'm so thankful for our health. The prayers and support and help we've had over the past year with the birth of the twins. I'm so thankful for each of my boys, Tommy's exploration and independence, Micah's easy going understanding personality, William's continued improvement with his therapy, and view into God's miracles, I'm so thankful that he's alive and here with us, and for everything he has taught us all.
For all the friends that have helped us and supported us over this past year, and continue to do so. Especially Courtney in how she cares for the boys while I have to work, and Lori who's been helping us with Tommy when William has therapy, my MOMs Club who helped when William was in the hospital and provided meals after the boys were born. For our church and what I'm learning there. My mom who often comes running to keep my sanity at a moment's notice. For Rob's parents who often keep Tommy entertained during various therapy appointments, and Rob's dad's retirement that has enabled him to do so.
And of course number one Jesus our savior and redeamer and friend.
Tuesday, November 25, 2008
Here's what we came up with working with ECI PT to fine ways for william to sit in a seat. He currently will tip over to all sides if left for too long, or will arch out of hard backed chairs. This seat supports all sides, and also limits some over stimulation, and allows him to have some upright time which helps digestion, bone growth and other things.
Tuesday, November 11, 2008
Here's what we got for 2 weeks of produce:
Basic Share $50Beans, Green approx. 1 lb
Carrots 2 lbs
Lettuce, Red Leaf 2
Peppers, Sweet Mixed 1 pint
Squash, Zucchini approx. 1.50-2 lbs
Squash, Hard, Butternut 1
Tomatoes, Roma (Plum) approx. 1 lb
Yams, Medium Garnet or Jewel approx. 3 lbs
Apples, Gala 7-8
Avocados, Hass 2
Banana, Green 3.5-4 lbs
Oranges, Valencia 8
Pears, Bartlett 6
Sunday, November 9, 2008
Friday, November 7, 2008
William is a bit more of a challenge to me, I'm not really sure how to do it since I've never fed a baby "baby food". So far I've offered him peas by holding them to his mouth and he eats them just fine, but can't quite get the food to his own mouth due to his troubles. So since he's interested in food, I needed to find some way to feed him. Micah was having Bananas and chicken tonight for dinner, so I took a piece of banana and chopped it with the pampered chef chopper, and did the same with some chicken, I offered them seperately, and got quickly tired of that, so I mixed them together, and added a little oil (for calories), and some applesauce since I was serving apple sauce to Tommy, and fed him with a spoon, just putting it near his mouth careful to not insert the spoon too far, and he ate the whole thing and then drank 2-3 oz of mommy milk!
Wednesday, November 5, 2008
Tommy was Thomas the Train for Halloween due to his obsession with trains recently, and he seems to be moving as fast as trains most of the time, so this in one of the only shots we got Halloween, I realized this as we were going to bed so I took a few more, they weren't much better either.
Tuesday, November 4, 2008
On Halloween, we took the kids trick - or - treating to a few houses, and the the babies stayed home with my friend Kati since Micah was sick, and took Tommy up to church to play in the bounce house, and eat all they candy he so desired.
Mother of a "Special" Child
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all
I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough
The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you
This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak
So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry
To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday
But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good
But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.
God Choose a mother for a "Special" child
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjotie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."