Wednesday, April 30, 2008
Monday, April 28, 2008
12:30-2:30 **Slot could be filled Tommy and Micah**
Sunday, April 27, 2008
Friday, April 25, 2008
Thursday, April 24, 2008
Ok so I yanked them out...Hopefully we'll have them out tomorrow.
Wednesday he took 145 cc (almost 5 oz) at the 5pm feeding and they gavaged the 8pm feeding, then at 11pm he took 80cc. The night doctor said we'd be going to full feeds tomorrow (according to the report from Dr Jan).
I asked if there were any special needs for finding a sitter for William, and he said the only thing was someone who's persistent with the feeds and won't just let him go after 30cc if he pretends to be content. Other than that no real special needs.
Wednesday, April 23, 2008
Other than having a hard time that Mommy has to leave so much he's been doing well. Here's what he want's to do most of the time with the baby. "Hold the Baby". This is Baby Micah. I really wonder how it's going to be when William is home.
My MOMs Club has been so helpful the past two weeks. THANKS AGAIN! But now it's time for me to ask others to help too.I like to make it up to the NICU for two of Williams bottles or feedings a day. He gets bottles at 11am, 5pm and 11pm. So here's when I need help:Day Time:3 possible shifts during the day: (If you can help longer times that is welcome too.) This is Tommy and Micah and either your house or mine, and you are welcome to bring your kids too. I live in Plano at Spring Creek and Custer.7:30-9:30a10:30-12:30 ** Most Needed
Mommy to Tommy 2 yrs 3/2006 + William and Micah 3/2008
Monday, April 21, 2008
Sunday, April 20, 2008
Friday, April 18, 2008
Thursday, April 17, 2008
Wednesday, April 16, 2008
Tuesday, April 15, 2008
Sunday, April 13, 2008
Saturday, April 12, 2008
Friday, April 11, 2008
Thursday, April 10, 2008
Wednesday, April 9, 2008
Tuesday, April 8, 2008
Monday, April 7, 2008
Sunday, April 6, 2008
Saturday, April 5, 2008
Though this means that this could mean a delay in getting William home; I have consulted with a cranial sacral therapist--the one that worked with the conjoined Egyptian twins, and she seems to think from what I described, that he will be able to work with William and get enough improvement that they can avoid the fundo part of the surgery. The only problem is that this therapist does not have privileges at this hospital, so he has agreed to go with Lydia as a "visitor" possibly next friday, they will let me know for sure on Tuesday to sort of evaluate him and show her some helpful exercises and therapies to do with him. The therapist said he is also going to send William's doctors some research, and the doctors have said that they're willing to look at it. While visiting me/william as a visitor of course they can't lay a hand on him because they don't have privileges, but hopefully they can show me somethings that will really help him.
As for feedings, he is presently getting 52 (or 55?) cc's through the NG tube every three hours, and in the next 12 hours, that will be increased to 60 cc's (this happened last night at 2am sorry I'm just now posting this), which is approximately 2 ounces.
Thursday, April 3, 2008
Wednesday, April 2, 2008
Tuesday, April 1, 2008
Mother of a "Special" Child
I'd like to be a mom someday
While playing with my baby doll,
I thought that job's not hard at all
I'd have a baby, maybe two,
a girl in pink...a boy in blue
Well I grew up and sure enough,
I'm now a mom and gosh it's tough
The baby that was sent to me,
was born with disabilities
At first I'm frightened through and through,
there's much to learn to care for you
This wasn't in my plans at all,
when I was young and played with dolls
Your mind and body were so weak,
you might not ever walk or speak
So much special care required,
I'm often scared and often tired
As months and years go slowly by,
I smile a lot but sometimes cry
To watch you grow and not complain,
though you endure your share of pain
Oh, how I'd hold you and I'd pray,
that you'd be healed and whole someday
But I knew that was not to be,
not physically or mentally
And so I taught you best I could,
your progress wasn't very good
But then one day I realized,
as I gazed into your loving eyes
That I had learned so much from you,
A love so unconditional,
it floods my soul and always will
I'm proud to say I gave you birth,
for you're an angel here on earth.
God Choose a mother for a "Special" child
This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?
Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.
"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."
"Forrest, Marjotie; daughter. Patron saint, Cecelia."
"Rutledge, Carrie; twins. Patron saint, Matthew."
Finally He passes a name to an angel and smiles, "Give her a handicapped child."
The angel is curious. "Why this one God? She's so happy."
"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."
"But she has patience?" asked the angel.
"I don't want her to have to much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."
"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make her live in her world and that's not going to be easy."
"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word'. She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle, and will know it!"
"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".
And what about her Patron saint? asked the angel, his pen poised in mid-air.
God smiles, "A mirror will suffice."